The problem with pacing is it
requires living a very regimented life within the bounds of what you are able
to do without being exhausted. When your tolerance limits are pretty low this
cuts out an awful lot of things that make life enjoyable. You can plan and
organise and conserve energy ‘til the cows come home, but some things are just
going to take more energy than you have available. At this point you have a
choice. You can either, not do it and stick to your pacing, or you can do it
and pay the price. You can miss out on exciting and important events and doing
things that you love, or you can do them and suffer for it
My sister is getting married this
summer. I am so pleased and excited for her, as personally I love being
married. And I know she and her fiancé will be very happy. She asked me to be a
bridesmaid for her, as she was for me. I didn’t hesitate at all in saying ‘yes’,
which I think surprised her slightly. We all know the day is going to be ‘too
much’ for me, unless I make a miraculous recovery in the next few months, and I
think some members of my family are very concerned about this. Whilst I
appreciate their concern and I am grateful for their desire to make things easier for me, I am not
concerned in the slightest. I know it will be ‘too much’, but given the choice
of not fully participating and maybe being ok, or participating fully and
suffering I would rather give it my all and pay for it.
I’ve called this post ‘Feel the
fear and do it anyway’, but for me there is no fear, there was earlier in my illness, but not now. I know what the price is
and I am willing to pay it. I think other people may be frightened or worried on
my behalf sometimes, but as I told someone recently, ‘It’s my choice, don’t
worry. If I wasn’t prepared to accept the consequences I wouldn’t be doing it.’
I enjoy and make the most of these events in my life whilst not dwelling on the
consequences. I suppose I have learned to ‘live in the moment’.
Obviously I cannot adopt this
attitude all the time. Ninety to ninety-five percent of the time I live
carefully and pace myself, living within the boundaries my illness has given me.
I believe that is the only way I can hope to recover. Fortunately I am now
healthy enough that I can do quite a few enjoyable and life affirming things
within these boundaries. But sometimes there are things that are too important
to miss, and I accept the price for these things with no regret or misgiving. I
accept what I cannot change. I believe you cannot go through life avoiding the
things which make it worth living.
‘Regret for the things we did can be tempered by
time; it is regret for the things we did not do that is inconsolable.’ - Sidney J. Harris
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